Real patients share their experiences of being diagnosed and living with primary biliary cholangitis (PBC).
Year diagnosed with PBC: 2013
My name is Nishele. I have a daughter in college, a son in the Marines, and a full‑time job teaching at the university level, and I am living with PBC.
Year diagnosed with PBC: 2014
My name is Diana. I found out I have primary biliary cirrhosis* (PBC) a year after my daughter Nishele was diagnosed with it. Now I am doing whatever I can to treat the disease so I can spend a lot more time with my family.
*Interview conducted in April 2015, before the widespread adoption of the term "primary biliary cholangitis."
Year diagnosed with PBC: 2012
My name is Wendy, and I live in Nottingham, England. Between work, volunteering, and taking care of my kids, I lead a very full life. And I am living with primary biliary cirrhosis* (PBC).
*Interview conducted in July 2014, before the widespread adoption of the term "primary biliary cholangitis."
Year diagnosed with PBC: 1992
My name is Wayne. I live with my wife, Elaine. Between the 2 of us, we have 4 children and 5 grandchildren. I’m an electrical engineer in the Memphis area, and I like to show dogs on the weekends.
Debbie, Brandi, and Bel
Location: Texas, Missouri, Minnesota
Three brave women share their stories of life with PBC: Debbie, a grandmother from Texas; Brandi, who is from Missouri and whose grandmother also had PBC; and Bel, who is from Minnesota and recently received a liver transplant.
Healthcare Professional Videos
Dr. Jennifer Pate, Chief of Psychiatry at Baylor St. Luke’s Medical Center, offers strategies that can help make living with PBC a little easier.
Managing itching caused by PBC
Learn about everyday tips for coping with the pruritus (itching) that many people with PBC experience.
Fighting fatigue caused by PBC
Discover more about PBC-related fatigue and find new ways to help you manage it.
Making the most of your appointment time
Find out how to maximize every healthcare visit, including how to get your questions answered, what to bring with you, and more.
Living successfully with PBC: A chat with the PBC collaborative
Host Ann Moore and guests Dr. Jennifer Pate, Cathy Mumford, and Laurie discuss what it means to live successfully with PBC.
All participating parties, including patients, physicians, and experts, were compensated by ICPT.