Treatment goals

The goal of a PBC treatment plan should be to help slow damage to the bile ducts and lower alkaline phosphatase (ALP) levels.

There are treatments available for PBC, so it is important to make sure your treatment plan is right for you.

  • Once you have a treatment plan in place, connect with your healthcare team often to keep track of your progress.
  • Because PBC is chronic, it is important that you and your healthcare team also make long-term treatment goals.

When people respond well to treatment:

  • Their ALP levels decrease
  • Their disease progression can slow down
  • Liver transplant may not be necessary
  • They could live longer than if they had not treated their PBC

It is important to start treatment early because medicine may work best in people whose PBC is still in the early stages.

People who don't respond well to treatment are at the highest risk for disease progression. To make sure you are responding to treatment:

  • Have your healthcare provider check your ALP every 3 to 6 months
  • Ask your healthcare provider to monitor your ALP level to make sure it is not elevated or increasing
  • Work with your healthcare provider to find the treatment plan that will best help lower your ALP level

Are you tracking your ALP level?

PBC

PBC Living® is an app made for people with PBC that can help you:

  • Save your liver enzyme test results (ALP and bilirubin)
  • Track those results over time to see how well your treatment is working

Start tracking to help you and your healthcare team make the PBC treatment plan that is best for you.

Download PBC Living App

Ann Moore

5 tips to help you remember to take your PBC medication

By Ann Moore, Nurse Practitioner and Liver Specialist

If you feel overwhelmed or sometimes just forget to take your medicine, you’re not alone. Taking your PBC medication as recommended is one of the best ways to keep you healthier longer. This means not missing doses because you forget or run out. Here are some tips that may help.

Stay organized

Stay organized

Get yourself a weekly pill box. It’s easy to forget whether you’ve taken a pill, but with this inexpensive tool, you can quickly check each day to see if you’ve taken your medicine.

Form a habit

Form a habit

Take your medicine as part of your regular routine, such as after your morning coffee or after you brush your teeth at night. Before you know it, you’ll have a new habit!

Set reminders

Set reminders

Whether you use a cell phone alarm, calendar alert, paper calendar—or a combination—setting a reminder is a simple way to stay on track with taking your medicine.

Prep weekly

Prep weekly

Spend a few minutes preparing for the week ahead. For your PBC treatment, this could mean refilling your prescription, filling your pill box, and setting your reminders.

Talk it out

Talk it out

If you find that you’re not taking your medication routinely, talk to your healthcare team. They can help you come up with a plan or possibly adjust your treatment.